Society for Participatory Medicine
Journal of Participatory Medicine
Case Studies
We welcome submissions for this section of JoPM. Case Studies are structured accounts that illustrate experiences with participatory medicine, which may be told from the perspective of individuals (patients and professionals) or in the context of practice settings. If you are interested in submitting a case study, you may do so here.
Case Studies, Vol. 5, 2013
Challenges in Measuring Patient Participation: Case Studies from British Columbia’s Patients as Partners Initiative
This article examines the implementation of the Patients as Partners initiative in British Columbia, which seeks to increase public engagement in health care, and the simultaneous development of coherent and practical measurements to gauge its success.
Read MoreCase Studies, Vol. 3, 2011
Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law
The authors use an ethical lens to focus on limits placed on health care decision making in the case of people governed by mental health law, using Victoria, Australia as their example.
Read MoreCase Studies, Vol. 3, 2011
The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery
A cancer program specialized in treating patients with multiple myeloma developed a participatory care model which could lead to a changing paradigm in health care delivery with major benefits to patients and lower costs for health care in the US.
Read MoreCase Studies, Vol. 3, 2011
Promoting Recovery-Oriented Mental Health Services through a Peer Specialist Employer Learning Community
This case study explores how the peer specialist employer learning community can effectively guide organizations through the process of adopting a participatory approach to mental health service provision.
Read MoreCase Studies, Vol. 3, 2011
Creating a Participatory Office Practice for Diabetes Care
Diabetes is a chronic condition that requires active participation by both the patient and various members of the physician’s office staff to achieve optimum outcomes. This paper discusses the Diabetes Master Clinician Program, a project that encourages participation in care though a disease registry, group visits, and empowerment of patients and office staff.
Read MoreCase Studies, Vol. 2, 2010
Health Care Decisions in Disasters: Engaging the Public on Medical Service Prioritization During a Severe Influenza Pandemic
Seattle & King County held public engagement meetings to obtain feedback and recommendations from the local community regarding the prioritization of scarce medical services during a severe pandemic, and how those services should be allocated.
Read MoreCase Studies, Vol. 2, 2010
Shifting from Shared to Collaborative Decision Making: A Change in Thinking and Doing
Despite its theoretical appeal, the concept of shared decision making in the clinical encounter has yet to translate into practice. In this article we revisit this approach and suggest an alternative we have labeled “collaborative decision making,” which may lead to more equitable and more favorable outcomes.
Read MoreCase Studies, Vol. 1, 2009
A Seat at the Table: A Research Advocate’s Journey
The story of one patient advocate and author who moved beyond her personal experience with breast cancer to focus on helping women with metastatic disease, which in turn has led to her further training and involvement with drug development, regulatory issues and other research issues.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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