Society for Participatory Medicine
Journal of Participatory Medicine
Research
We welcome submissions for this section of JoPM. Research Articles describe research studies using qualitative, quantitative, experimental, survey, and innovative multi-methodological designs to rigorously test hypotheses about the prevalence and impact of participatory medicine and interventions to facilitate it.
Research, Vol. 5, 2013
Structuring Patient Advocates’ Appraisal and Evaluation of Health Research and Quality of Care
This study identifies the basic “issues that matter” to patients in clinical and research settings, with the goal of helping patients to better evaluate quality of care and health research.
Read MoreResearch, Vol. 5, 2013
Identifying Design Considerations for a Shared Decision Aid for Use at the Point of Outpatient Clinical Care: An Ethnographic Study at an Inner City Clinic
This study identifies several potential opportunities for the design and implementation of a computerized decision aid for an inner city clinic and for other outpatient clinical environments. The findings can inform the design and implementation of computerized decision aids for shared medical decision-making and inform the design of health information technologies for a wide range of clinical contexts.
Read MoreResearch, Vol. 5, 2013
Mindfulness, Self-Care, and Participatory Medicine: A Community’s Clinical Evidence
Along with a growing body of studies documenting the effectiveness of mindfulness-based learning interventions, the authors’ findings demonstrate the ecological validity of mindfulness practice in the domain of participatory health care.
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What Patients Observe about Teamwork in the Emergency Department: Development of the PIVOT Questionnaire
This study appears to confirm that patients’ comments about health care services can extend beyond their satisfaction with the care they received. Expanding our understanding of patients’ awareness of team interactions may support efforts to improve teamwork processes that align with a patient-centered approach.
Read MoreResearch, Vol. 4, 2012
Impact of an EMR-Based Daily Patient Update Letter on Communication and Parent Engagement in a Neonatal Intensive Care Unit
This study found that using EMR data in the form of a daily patient update letter for parents of neonatal intensive care unit (NICU) patients resulted better communication and improved parents’ perceived competence to manage information in the NICU.
Read MoreResearch, Vol. 4, 2012
The Many Faces of Patient Engagement
This study was conducted to gain a more clear understanding of the term “patient engagement” and what it means to different stakeholders in different health settings.
Read MoreResearch, Vol. 4, 2012
Examining a Proactive Self-Care Index in a Mindfulness-Based Stress Reduction (MBSR) Program
Proactive self-care is a fundamental element of the Participatory Medicine model. Few indices measure self-care, and research about interventions that enhance self-care is sparse. This study aimed to develop a simple, direct measure of the dimension of proactive self-care in medical settings for use in research about participatory medical interventions.
Read MoreResearch, Vol. 3, 2011
Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.
Read MoreResearch, Vol. 3, 2011
Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations
Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.
Read MoreResearch, Vol. 3, 2011
Perceptions About Quality of Care: Evidence from a Globe and Mail Blog
The authors found the insights gained from a newspaper blog to be a very revealing and useful form of data that can inform health policy, clinical practice, and further research.
Read MoreResearch, Vol. 3, 2011
Patient Predictors of Detection of Depression and Anxiety Disorders in Primary Care
Findings of this study indicated that patient disclosure was highly related to the probability of primary care physician detection.
Read MoreResearch, Vol. 3, 2011
Participatory Action Research in Public Mental Health and a School of Nursing: Qualitative Findings from an Academic-Community Partnership
Participatory-action research (PAR) is increasingly seen as an effective way of enhancing the relevance of scientific research, bridging science and service, and improving the adoption of evidence-based practice in health care. This study examines the development of a PAR initiative starting with a core group of mental health providers at a public mental health clinic and including relevant stakeholders in the community.
Read MoreResearch, Vol. 3, 2011
The Minnesota Pandemic Ethics Project: Sequenced, Robust Public Engagement Processes
The Minnesota Pandemic Ethics Project developed ethical frameworks for rationing scarce health-related resources during a severe influenza pandemic, including implementation guidance. The project yielded useful guidance and benefited from multiple public engagement methods and the sequence in which they were employed.
Read MoreResearch, Vol. 2, 2010
Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research
A group of healthy men and women ages 35-47 came together to investigate citizen science as a model for personal health research. A pilot study was designed and conducted to investigate genomic data as it relates to B vitamin absorption and homocysteine levels.
Read MoreResearch, Vol. 2, 2010
Autism and the Measles, Mumps, and Rubella Vaccine: Need to Communicate a Health Study Retraction to Patients
The aim of this study was to elicit the beliefs of the Canadian public about the safety of the MMR vaccine immediately following the 2010 retraction of a 1998 study published in the Lancet.
Read MoreResearch, Vol. 2, 2010
A Multivariate Test of Communication Competence, Social Support, and Coping among Hispanic Lay Caregivers for Loved Ones with Alzheimer’s Disease: An Extension of the Relational Health Communication Competence Model
This study explores relational health communication competence, social support, and perceived general coping among Hispanic caregivers for family members having Alzheimer’s disease or related dementia; and to test the Relational Health Communication Competence Model using data obtained in Spanish and English.
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Physician Communication: Barriers to Achieving Shared Understanding and Shared Decision Making with Patients
Our study investigates the specific barriers between physicians and patients that inhibit shared understanding and shared decision making.
Read MoreResearch, Vol. 2, 2010
Self-Diagnosis: A Discursive Systematic Review of the Medical Literature
This thematic review of clinical articles from the PubMed database evaluates the beliefs about, and discursive construction of, self-diagnosis from a medical perspective.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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