Society for Participatory Medicine
Journal of Participatory Medicine
Media Watch
On the Web, Vol. 5, 2013
Neurofibromatosis Social Media Trends
According to a new survey, neurofibromatosis (NF) patients use NF-related social media for information gathering more than emotional support.
Read MoreBooks & Literature, Vol. 5, 2013
Book Review: Far From the Tree
This book peeled back the personal, historical, cultural layers of caregiving in a manner that has forever shaken my perspective about best health.
Read MoreBooks & Literature, Vol. 4, 2012
Book Review: Critical Decisions: How You and Your Doctor Can Make the Right Medical Choices Together
Better than any existing literature, this book highlights techniques and behaviors that clinicians must use to support the empowered patient, and suggests significant improvements to decision aids.
Read MoreBooks & Literature, Vol. 4, 2012
Book Review: e-Patients Live Longer
This easily read Guide addresses the relationship and communication among the health care team (patients and their lay and professional caregivers), safety, information gathering, privacy, cost, and health care’s future.
Read MoreConferences, Vol. 4, 2012
Health Camp KC: The Unconference
The overarching topic at this unorthodox conference weekend was “Patient Involvement, Engagement, and Empowerment.”
Read MoreOn the Web, Vol. 4, 2012
IOM Calls for Enlisting Patients to Improve Care and Lower Costs
The new IOM consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America, presents specific and very “participatory” recommendations for improving the efficiency and quality of the US health care system.
Read MoreBooks & Literature, Vol. 4, 2012
Book Review: Depression: A Guide for the Newly Diagnosed
This book uses the author’s expertise as a clinical psychologist and that of other experts to pull together information about depression which many people want to know.
Read MoreConferences, Vol. 4, 2012
Health Datapalooza 2012: Apps Are Making a Difference
Health Datapalooza III was a combination of upbeat speeches about the climate of innovation and public-private sector cooperation, and enthusiastic demonstrations by developers of new health care applications.
Read MoreConferences, Vol. 4, 2012
HIMSS 2012 Highlights: What’s Hot
Central themes included Stage 1 and Stage 2 of meaningful use; ICD-10; mobile health; mHIMSS; business and clinical analytics; and patient-centered medical homes.
Read MoreBooks & Literature, Vol. 3, 2011
Book Review: A Symphony in the Brain
This book offers a history and overview of neurofeedback, a type of biofeedback that aims to help patients control their brain activity.
Read MoreOn the Web, Vol. 3, 2011
“Experience-Based Co-Design” Helps Providers Improve Care
The King’s Fund’s online toolkit for health care professionals promotes communication with patients to help design a better care experience.
Read MoreOn the Web, Vol. 3, 2011
CMS Releases New Tools and Enhancements for Consumers and Providers
The Centers for Medicare & Medicaid Services (CMS) has released a new online tool and improved others to empower consumers to make informed choices about their health care, and to help improve the quality of care in American health care institutions.
Read MoreOn the Web, Vol. 3, 2011
Recommended Website: “Team Up for Health”
This is a good example of an online tool that helps primary care providers support patients in the self-management of their chronic conditions.
Read MoreBooks & Literature, Vol. 3, 2011
Book Review: “Out of Her Mind”
The selections in this book can help validate people struggling with mental illness, and they show how the mental health industry still needs to become more patient centered.
Read MoreConferences, Vol. 3, 2011
Doctors 2.0 & You
This European conference is dedicated to understanding the physician’s perspective on use of new technologies and how physicians use these technologies to collaborate with colleagues, patients, payers, government, and industry.
Read MoreConferences, Vol. 3, 2011
CHI 2011 Conference on Human Factors in Computing Systems
Health was a featured community at the CHI conference, and several papers in particular stood out as being relevant to participatory medicine.
Read MoreConferences, Vol. 3, 2011
Mobile Health 2011: What Really Works: A Patient POV
The author offers a patient’s perspective on the Stanford 2011 Mobile Health Conference held in May 2011.
Read MoreBooks & Literature, Vol. 3, 2011
A Handbook for Patients Who Want to Change Health Care
A new report provides inspiration and guidance for activists who want to advance their aim of health care that recognizes and welcomes the participation of all players.
Read MoreOn the Web, Vol. 3, 2011
SPM Members Weigh in on “Quality”
To read more comments on Dave deBronkart’s recent JoPM article about quality, visit the Society for Participatory Medicine’s public listserv archives.
Read MoreOn the Web, Vol. 3, 2011
Recommended Post: “Time to Tango”
JoPM’s Editor in Chief recommends his former co editor’s blog post reflecting on why doctor-patient partnerships are still not as common as we would hope.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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