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Participatory Medicine is a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.

e-Patients Blog

Hugo Campos has major arrhythmia, goes to ER, wants his data even more now--e-Patient Dave May 10, 2012
SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo’s doctor the data, to understand what episodes happen in Hugo’s heart, […]
Is “gimme my damn data” damning to patients?--Kathleen O'Malley May 8, 2012
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients — that he may be perceived by clinicians as a “difficult patient” just because he wants his […]