Perspective

 

Perspective, Narratives, Vol. 9, 2017

A Framework for Designing Digital Health Tools with Empathy

Empathy is a fundamental principle of medicine, yet it is often overlooked in the design of digital health tools. This omission may undermine the main purpose of these tools — to engage patients in order to improve outcomes. The author offers a straightforward way to effectively incorporate empathy into the design of patient-facing digital health tools.

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Perspective, Narratives, Vol. 8, 2016

Out-of-Network Provider Billed as In-Network: My Appeal Process

An empowered patient shares his “out-of-network nightmare” of being wrongfully denied insurance coverage, and how his perseverance in challenging the injustice paid off.

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Perspective, Narratives, Vol. 8, 2016

Collaboration and Information: Conquering My Uterus

When the author, a medical writer, found herself in the unfamiliar role of being a patient that she truly understood how important it was to ensure that both the clinician and patient worked as a team to determine and commit to the best course of care.

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Perspective, Narratives, Vol. 8, 2016

Patient Engagement: A Skill Cultivated Through Deliberate Practice? How the Evolution of Lean May Reveal a New Frontier in Person- and Family-Centered Care

A shocking medical diagnosis doesn’t come with a playbook for how to face it. The author created his own playbook for coping with his infant son’s condition, by applying Lean management principles he learned in the corporate world.

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Perspective, Narratives, Vol. 8, 2016

How a Patient Was Motivated by Reading His Office Notes

A patient who tried for years, and failed, to make healthier lifestyle choices finally found inspiration in the office notes his doctor shared with him.

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Perspective, Narratives, Vol. 7, 2015

An e-Patient Awakening: Endometriosis

An anonymous e-patient candidly shares lessons learned after endometriosis surgery.

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Perspective, Narratives, Vol. 7, 2015

Caseous Swiss Medicine

A medical student recounts a tense situation that occured in an inpatient setting because of the many “holes” in the “Swiss cheese” system.

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Narratives, Vol. 6, 2014

But You Said I Wouldn’t Need Radiation

Which physician would you rather have as a patient? Here a breast cancer survivor analyzes the communication styles of two of her doctors — the first left her anxious and bereft, while the second helped her feel informed and hopeful.

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Narratives, Vol. 5, 2013

Going Digital with Patients: Managing Potential Liability Risks of Patient-Generated Electronic Health Information

Some physicians are understandably reluctant to receive digital data from patients due to professional liability concerns, yet this means missing patient-generated health data that could be crucial to improving health care outcomes. The authors show some solutions to this dilemma in the form of specific steps physicians can take to mitigate their liability risk.

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Narratives, Vol. 5, 2013

“What Brings You In Today?” Assessing and Addressing Potential Cross-Cultural Communication Gaps

Doctors who start clinical visits with open-ended questions — encouraging patients to express their health concerns in their own way — are on their way to achieving successful patient-centered communication. But when there is a language and/or culture gap between doctor and patient, communication may suffer — hindering patient engagement and making patients feel their care is suboptimal. What can be done to address communication gaps or cross-cultural language gaps?

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Narratives, Vol. 5, 2013

A Mother’s Journey to Diagnose Her Daughter’s Rare Disease

Many patients with rare disorders are not diagnosed by doctors, nurses, or researchers, but by a fierce and driven group of detective known as mothers. I know because I am one.

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Narratives, Vol. 5, 2013

Integrative Medicine’s Pragmatic Mission

Integrative medicine is not about simply studying therapeutic tools that are not traditionally used. It is about understanding how to use the most appropriate tools effectively to enhance health and healing.

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Narratives, Vol. 5, 2013

Steel Standing: Metal Meets Muscle; A Patient’s Perspective

A family caregiver tells how she helped solve the mystery of her mother’s debilitating condition by persistently seeking out published studies and, on the fourth try, finding a surgeon who would listen to the patient and her advocate.

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Narratives, Vol. 5, 2013

e-Patients in Twitter Hashtag Communities

There’s promising evidence that Twitter hashtag communities are a force for improvement in medicine — a force largely driven by patients.

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Narratives, Vol. 5, 2013

Metastatic Breast Cancer: Lessons Learned from My Missed Diagnosis

A woman with terminal metastatic breast cancer shares her story, a cautionary tale about medical mistakes, basic communication failures of clinicians, and her naive faith in a “world class academic health system.”

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Narratives, Vol. 5, 2013

Evolving from Patient Zero to Dr. House

I was a “patient zero” — not as the term is used in infectious disease outbreaks — but as in describing my level of knowledge entering a mini-med school class where I had to navigate the maze of medical websites to find information that I could understand and trust.

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Narratives, Vol. 5, 2013

Me, Myself, & the MRI

The author, using a pseudonym, shares the story of her nerve-wracking cancer screening experience that turned hopeful thanks to a participatory radiologist.

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Narratives, Vol. 4, 2012

One Clinician’s Awakening

I am a nurse. I am a patient. I was sure about which role made me strong and which one made me weak. Which was helpful to others and which was a burden. Then an email arrived in my inbox that would turn all those beliefs upside down.

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Narratives, Vol. 4, 2012

Listen, Dream, and Change: Using the Power of Patients to Improve Care

We need to make our care more patient-centered. The author illustrates with some examples from his daily practice that we should use the power of patients to achieve the necessary changes. Listening and dreaming appear to be important catalysts.

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Narratives, Vol. 4, 2012

Using Self-Coaching to Improve Life with Fibromyalgia

The author discusses her use of psychological self-coaching techniques to maintain optimum health and functioning while living with fibromyalgia syndrome.

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