Society for Participatory Medicine
Journal of Participatory Medicine
Vol. 2, 2010
Letters, Vol. 2, 2010
Response to “Evidence that Engagement Does Make a Difference”
Why do patients with non-small cell lung cancer (NSCLC) opt out of surgery as a treatment option? Having been there with my wife, who survived NSCLC, (Stage 4; re-staged to Stage 2 after chemo), I can offer several reasons based upon real-life experience.
Read MoreCommentary, Vol. 2, 2010
What “Participatory” Means to Me
Reflecting on my own experiences, I wonder if my modus operandi would be considered truly participatory.
Read MoreCommentary, Vol. 2, 2010
The Term “Patient” May Describe Me … But It Does Not Define Me
Although some individuals prefer to describe themselves as e-patients, em-patients, consumers, clients, etc., the historic term “patient” is, in fact, a sufficient and effective descriptor of “a person seeking or needing the services of a health care professional.”
Read MoreReviews, Vol. 2, 2010
The Role of Patient Organizations in Participatory Medicine: Can Virtual Health Communities Help Participatory Medicine Accomplish Its Objectives?
Patient organizations aim to improve the quality of life for people and their families who are affected by certain health conditions. Even though there has been a sharp rise in the demands on health systems during the last few decades, these systems have benefited from technological advances and the increasingly active role of users in managing their own health.
Read MoreResearch, Vol. 2, 2010
Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research
A group of healthy men and women ages 35-47 came together to investigate citizen science as a model for personal health research. A pilot study was designed and conducted to investigate genomic data as it relates to B vitamin absorption and homocysteine levels.
Read MoreCommentary, Vol. 2, 2010
Evidence that Engagement Does Make a Difference
To date, there has been little direct evidence to support the claim that our engagement affects health outcomes. So when a study comes along that specifically examines how people engage in a high-stakes, effective intervention and its impact on their health, it’s worth a close look.
Read MoreResearch, Vol. 2, 2010
Autism and the Measles, Mumps, and Rubella Vaccine: Need to Communicate a Health Study Retraction to Patients
The aim of this study was to elicit the beliefs of the Canadian public about the safety of the MMR vaccine immediately following the 2010 retraction of a 1998 study published in the Lancet.
Read MoreCase Studies, Vol. 2, 2010
Health Care Decisions in Disasters: Engaging the Public on Medical Service Prioritization During a Severe Influenza Pandemic
Seattle & King County held public engagement meetings to obtain feedback and recommendations from the local community regarding the prioritization of scarce medical services during a severe pandemic, and how those services should be allocated.
Read MoreEditorials, Vol. 2, 2010
A Thank You to Departing Co-Editor Gruman
Citation: Smith CM. A thank you to departing co-editor Gruman. J Participat Med. 2010 Dec 13; 2:e16. Published: December 13, 2010. Competing Interests: The author has declared that no competing interests exist. The JoPM editorial team has been very fortunate to have Jessie Gruman serve as one of the founding Co-Editors. Jessie, with great wit [...]
Read MoreCommentary, Vol. 2, 2010
Who’s a Peer? Improving Peer Review by Including Additional Sources of Expertise
The credibility, authority, and relevance of prestigious journals are being questioned in the light of an apparent increase in publications marred by technical flaws or misconduct, despite having passed peer review. To strengthen the review process, JoPM proposes to allow health care users and other lay experts to participate in the shaping of new knowledge by providing feedback on the quality of the evidence.
Read MoreResearch, Vol. 2, 2010
A Multivariate Test of Communication Competence, Social Support, and Coping among Hispanic Lay Caregivers for Loved Ones with Alzheimer’s Disease: An Extension of the Relational Health Communication Competence Model
This study explores relational health communication competence, social support, and perceived general coping among Hispanic caregivers for family members having Alzheimer’s disease or related dementia; and to test the Relational Health Communication Competence Model using data obtained in Spanish and English.
Read MoreCase Studies, Vol. 2, 2010
Shifting from Shared to Collaborative Decision Making: A Change in Thinking and Doing
Despite its theoretical appeal, the concept of shared decision making in the clinical encounter has yet to translate into practice. In this article we revisit this approach and suggest an alternative we have labeled “collaborative decision making,” which may lead to more equitable and more favorable outcomes.
Read MoreResearch, Vol. 2, 2010
Physician Communication: Barriers to Achieving Shared Understanding and Shared Decision Making with Patients
Our study investigates the specific barriers between physicians and patients that inhibit shared understanding and shared decision making.
Read MoreNarratives, Vol. 2, 2010
Judy Feder: Narrative of a Breast Cancer e-Patient
I’ve been an e-patient for more than seven years, beginning within weeks of my diagnosis of metastatic breast cancer. I didn’t know how rich, transformative and even lifesaving being an e-patient would be.
Read MoreConferences, Vol. 2, 2010
Report on the “Reassembling Health Workshop: Exploring the Role of the Internet of Things”
This review reports on the workshop “Reassembling Health: exploring the role of the Internet of Things.” The aim of the workshop was to bring together professionals from different disciplines in order to envision future scenarios enabling patient participation, home-, mobile-, and self-care.
Read MoreOn the Web, Vol. 2, 2010
American Medical News Explores Social Media’s Pitfalls and Opportunities for Physicians
A report on a recent American Medical News article that explores the special challenges posed by social media to physicians and medical students.
Read MoreResearch, Vol. 2, 2010
Self-Diagnosis: A Discursive Systematic Review of the Medical Literature
This thematic review of clinical articles from the PubMed database evaluates the beliefs about, and discursive construction of, self-diagnosis from a medical perspective.
Read MoreInnovations, Vol. 2, 2010
Innovations in Participatory Medicine: The Advent of Do-It-Yourself Blood Glucose Monitoring
The advent of blood glucose self-monitoring is a story of innovations in monitoring technology and the efforts of one particularly determined patient to gain access to this technology and realize its potential, going on to advocate for widespread access to it for patients.
Read MoreInnovations, Vol. 2, 2010
“Innovations in Participatory Medicine”: A Call for Submissions
We are pleased to announce the launch of a new section within the Journal of Participatory Medicine, “Innovations in Participatory Medicine: Tracing the History and Anticipating the Future.” The section welcomes contributions on the topic of innovations that support shared decision making and participatory medicine.
Read MoreOn the Web, Vol. 2, 2010
Snapshot of People’s Engagement in Their Health Care
The “Snapshot of People’s Engagement in Their Health Care” (http://www.cfah.org/pdfs/CFAH_Snapshot_Abridged_2010.pdf) issued by the Center for Advancing Health (CFAH) provides an analysis of the actions people take (and don’t take) to benefit from the care available to them.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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