Vol. 3, 2011

 

Narratives, Vol. 3, 2011

The Patient Will See You Now

Pressure that physicians feel to maintain a good business model threatens to overlook a critical part of our “product.” In health care, the patient’s story and the relationship have ironically become the obstacle, rather than the objective.

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Books & Literature, Vol. 3, 2011

Book Review: A Symphony in the Brain

This book offers a history and overview of neurofeedback, a type of biofeedback that aims to help patients control their brain activity.

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Commentary, Vol. 3, 2011

The Rewards of Being a Participatory Health Care Provider

The author gives the provider’s perspective on the story of a woman who became an engaged advocate for her two disabled sisters, and touches on some of the principle tenets of participatory medicine that guided their work together.

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Narratives, Vol. 3, 2011

Three Sisters, One Voice

This is the story of a family in crisis and how a unique model of participatory medicine enabled three sisters (two patients and their advocate) to achieve vastly improved medical management of a congenital brain disease and comorbid conditions.

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Research, Vol. 3, 2011

Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices

This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.

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Narratives, Vol. 3, 2011

More Support and Information Needed for Getting off Psych Drugs

Concerned about the long-term dangers of psychiatric drugs, the author decided to discontinue his antidepressant. He discovered that it is very common for people to run into numerous problems when trying to discontinue psych drugs. Very little information, assistance, or support is available for doing this.

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Reviews, Vol. 3, 2011

Health Information Exchange: A Stepping Stone Toward Continuity of Care and Participatory Medicine

The author analyzes two successful health information exchange networks that represent promising models for integrating patient health information into one readily available source.

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Commentary, Vol. 3, 2011

Medication Adherence: More than Reminders

Focusing on reminders alone ignores the many other factors that contribute to nonadherence, improper use, and potentially harmful results. Better patient-provider communication is crucial to solving these problems.

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Innovations, Vol. 3, 2011

Just Text Me: Using SMS Technology for Collaborative Patient Mood Charting

Mood 24/7 is an innovation in traditional mood charting that uses text-messaging technology and may increase patient engagement and accuracy in reporting mood symptoms.

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On the Web, Vol. 3, 2011

“Experience-Based Co-Design” Helps Providers Improve Care

The King’s Fund’s online toolkit for health care professionals promotes communication with patients to help design a better care experience.

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Commentary, Vol. 3, 2011

A Skydiver Jumps, and an Online Community Exults

A cancer patient shares a joyful story with her online support group and is surprised to learn how much it means to her fellow members.

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Case Studies, Vol. 3, 2011

Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law

The authors use an ethical lens to focus on limits placed on health care decision making in the case of people governed by mental health law, using Victoria, Australia as their example.

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On the Web, Vol. 3, 2011

CMS Releases New Tools and Enhancements for Consumers and Providers

The Centers for Medicare & Medicaid Services (CMS) has released a new online tool and improved others to empower consumers to make informed choices about their health care, and to help improve the quality of care in American health care institutions.

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Commentary, Vol. 3, 2011

My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient

The author reflects on the eight attributes that make up her personal definition of a participatory patient.

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Research, Vol. 3, 2011

Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations

Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.

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On the Web, Vol. 3, 2011

Recommended Website: “Team Up for Health”

This is a good example of an online tool that helps primary care providers support patients in the self-management of their chronic conditions.

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Books & Literature, Vol. 3, 2011

Book Review: “Out of Her Mind”

The selections in this book can help validate people struggling with mental illness, and they show how the mental health industry still needs to become more patient centered.

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Letters, Vol. 3, 2011

One Step Forward, Two Steps Back: Why Can’t We Protect Doctors Who Put Patients First?

A reader expresses his frustration over a system that condemns doctors who try to humanize medicine through social media.

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Conferences, Vol. 3, 2011

Doctors 2.0 & You

This European conference is dedicated to understanding the physician’s perspective on use of new technologies and how physicians use these technologies to collaborate with colleagues, patients, payers, government, and industry.

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Conferences, Vol. 3, 2011

CHI 2011 Conference on Human Factors in Computing Systems

Health was a featured community at the CHI conference, and several papers in particular stood out as being relevant to participatory medicine.

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