Society for Participatory Medicine
Journal of Participatory Medicine
Vol. 3, 2011
Narratives, Vol. 3, 2011
The Patient Will See You Now
Pressure that physicians feel to maintain a good business model threatens to overlook a critical part of our “product.” In health care, the patient’s story and the relationship have ironically become the obstacle, rather than the objective.
Read MoreBooks & Literature, Vol. 3, 2011
Book Review: A Symphony in the Brain
This book offers a history and overview of neurofeedback, a type of biofeedback that aims to help patients control their brain activity.
Read MoreCommentary, Vol. 3, 2011
The Rewards of Being a Participatory Health Care Provider
The author gives the provider’s perspective on the story of a woman who became an engaged advocate for her two disabled sisters, and touches on some of the principle tenets of participatory medicine that guided their work together.
Read MoreNarratives, Vol. 3, 2011
Three Sisters, One Voice
This is the story of a family in crisis and how a unique model of participatory medicine enabled three sisters (two patients and their advocate) to achieve vastly improved medical management of a congenital brain disease and comorbid conditions.
Read MoreResearch, Vol. 3, 2011
Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.
Read MoreNarratives, Vol. 3, 2011
More Support and Information Needed for Getting off Psych Drugs
Concerned about the long-term dangers of psychiatric drugs, the author decided to discontinue his antidepressant. He discovered that it is very common for people to run into numerous problems when trying to discontinue psych drugs. Very little information, assistance, or support is available for doing this.
Read MoreReviews, Vol. 3, 2011
Health Information Exchange: A Stepping Stone Toward Continuity of Care and Participatory Medicine
The author analyzes two successful health information exchange networks that represent promising models for integrating patient health information into one readily available source.
Read MoreCommentary, Vol. 3, 2011
Medication Adherence: More than Reminders
Focusing on reminders alone ignores the many other factors that contribute to nonadherence, improper use, and potentially harmful results. Better patient-provider communication is crucial to solving these problems.
Read MoreInnovations, Vol. 3, 2011
Just Text Me: Using SMS Technology for Collaborative Patient Mood Charting
Mood 24/7 is an innovation in traditional mood charting that uses text-messaging technology and may increase patient engagement and accuracy in reporting mood symptoms.
Read MoreOn the Web, Vol. 3, 2011
“Experience-Based Co-Design” Helps Providers Improve Care
The King’s Fund’s online toolkit for health care professionals promotes communication with patients to help design a better care experience.
Read MoreCommentary, Vol. 3, 2011
A Skydiver Jumps, and an Online Community Exults
A cancer patient shares a joyful story with her online support group and is surprised to learn how much it means to her fellow members.
Read MoreCase Studies, Vol. 3, 2011
Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law
The authors use an ethical lens to focus on limits placed on health care decision making in the case of people governed by mental health law, using Victoria, Australia as their example.
Read MoreOn the Web, Vol. 3, 2011
CMS Releases New Tools and Enhancements for Consumers and Providers
The Centers for Medicare & Medicaid Services (CMS) has released a new online tool and improved others to empower consumers to make informed choices about their health care, and to help improve the quality of care in American health care institutions.
Read MoreCommentary, Vol. 3, 2011
My 8-Point Participatory Philosophy: What Makes Me a Participatory Patient
The author reflects on the eight attributes that make up her personal definition of a participatory patient.
Read MoreResearch, Vol. 3, 2011
Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations
Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.
Read MoreOn the Web, Vol. 3, 2011
Recommended Website: “Team Up for Health”
This is a good example of an online tool that helps primary care providers support patients in the self-management of their chronic conditions.
Read MoreBooks & Literature, Vol. 3, 2011
Book Review: “Out of Her Mind”
The selections in this book can help validate people struggling with mental illness, and they show how the mental health industry still needs to become more patient centered.
Read MoreLetters, Vol. 3, 2011
One Step Forward, Two Steps Back: Why Can’t We Protect Doctors Who Put Patients First?
A reader expresses his frustration over a system that condemns doctors who try to humanize medicine through social media.
Read MoreConferences, Vol. 3, 2011
Doctors 2.0 & You
This European conference is dedicated to understanding the physician’s perspective on use of new technologies and how physicians use these technologies to collaborate with colleagues, patients, payers, government, and industry.
Read MoreConferences, Vol. 3, 2011
CHI 2011 Conference on Human Factors in Computing Systems
Health was a featured community at the CHI conference, and several papers in particular stood out as being relevant to participatory medicine.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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