Vol. 8, 2016

 

Research, Evidence, Vol. 8, 2016

Exploring Self-Tracking as a Participatory Research Activity Among Women with Endometriosis

Women with endometriosis experience high rates of morbidity and a greatly reduced quality of life. This study confirms that women with endometriosis are willing to self-track as a participatory research activity, that the variables women want to track will be helpful to researchers, and that these variables are missing from current knowledge about endometriosis, but it is feasible to track them using patient participation.

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Perspective, Narratives, Vol. 8, 2016

Out-of-Network Provider Billed as In-Network: My Appeal Process

An empowered patient shares his “out-of-network nightmare” of being wrongfully denied insurance coverage, and how his perseverance in challenging the injustice paid off.

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Perspective, Narratives, Vol. 8, 2016

Collaboration and Information: Conquering My Uterus

When the author, a medical writer, found herself in the unfamiliar role of being a patient that she truly understood how important it was to ensure that both the clinician and patient worked as a team to determine and commit to the best course of care.

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Research, Evidence, Vol. 8, 2016

Shared Decision Making at the General Internal Medicine Outpatient Clinic of the Philippine General Hospital: Patient’s Perspective

The authors developed and used a Filipino version of the 9-Item Shared Decision Making Questionnaire (SDM Q-9) to gauge patients’ impressions of how effectively their physicians practiced shared decision making in their clinical encounters at the Philippine General Hospital. Patients agreed that shared decision making was being used, but they identified areas where implementation could be strengthened.

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Research, Evidence, Vol. 8, 2016

Person-Centered Approach to Control Preferences in Psychiatric Outpatients

This study uses Multiple Correspondence Analysis (MCA) to gain insight into psychiatric patients’ control preferences of participation in decision making about their treatment. The authors conclude that MCA may help clinicians create individually tailored interventions to promote patient participation in decision making.

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Research, Evidence, Vol. 8, 2016

Ethnicity and Doctor-Patient Communication: An Exploratory Study of University of Abuja Teaching Hospital, Nigeria

This study explores how factors such as language, a physician’s ethnicity, and patients’ gender can affect the nature of doctor-patient communication.

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Research, Evidence, Vol. 8, 2016

Adolescents’ Perspectives on Having Type I Diabetes, on Current Outpatient Diabetes Care, and on Improvement of Care by Using the Internet

The authors interviewed adolescents to determine how satisfied they were with their diabetes treatment. The adolescents were not satisfied with their access to physicians for non-emergency questions, but felt that an online treatment environment would improve communication.

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Perspective, Narratives, Vol. 8, 2016

Patient Engagement: A Skill Cultivated Through Deliberate Practice? How the Evolution of Lean May Reveal a New Frontier in Person- and Family-Centered Care

A shocking medical diagnosis doesn’t come with a playbook for how to face it. The author created his own playbook for coping with his infant son’s condition, by applying Lean management principles he learned in the corporate world.

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Research, Evidence, Vol. 8, 2016

The Value of a Therapeutic Gardening Intervention for Post-Stroke Patients’ Engagement During Rehabilitation: An Exploratory Qualitative Study

This study found that post-stroke patients who engage in therapeutic gardening perceive it as a way to foster their active role in medical care, enabling a proactive and positive attitude towards disease management. The authors encourage more research to grow the knowledge base regarding therapeutic gardening interventions.

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Commentary, Opinion, Vol. 8, 2016

Alternative Sources of Health Care On Every Corner and in Cyberspace

Faced with a shortage of primary care doctors, patients are finding alternative options — both in-person and online — for basic, sudden, non- emergency and routine medical needs.

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Research, Evidence, Vol. 8, 2016

Engaging Patients in Managing Chronic Disease: An Analysis of Data from the Connecticut Health Care Survey

This study highlights gaps in patient-provider discussions regarding modifiable behaviors that contribute to poor health and identifies opportunities for health care providers to be more proactive in engaging patients in pursuing their health goals.

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Research, Vol. 8, 2016

Community-Academic Partnership: Identifying Patient Perceptions Related to Obesity in a Spina Bifida Population

This paper presents a community-based collaborative care model designed to facilitate patient involvement and patient selection of meaningful lifestyle improvement outcomes for Latino youth with spina bifida.

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Research, Evidence, Vol. 8, 2016

Selecting Quality Indicators in Child and Adolescent Mental Health Care: A “Stakeholder-Driven” Approach

This study shows how a participatory approach provides a valid method of selecting relevant and important quality indicators for a specific setting.

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Conferences, Media Watch, Vol. 8, 2016

International Workshop on Infrastructures for Health Care: Patient-Centered Care and Patient Generated Data

Technology is allowing more and more patients to become health data “prosumers” (producers and consumers), potentially promoting richer, more participatory forms of patient-doctor relations. But certain challenges must be overcome before patient-generated data sharing can become a part of everyday clinical work.

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Research, Evidence, Vol. 8, 2016

Understanding Parent Perspectives Concerning Adolescents’ Online Access to Personal Health Information

Are parents comfortable with the idea of their teen children viewing their own personal health records? This study is one of the first to examine parental attitudes towards providing adolescents access to their own health information, and the first among parents of underserved youth.

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Perspective, Narratives, Vol. 8, 2016

How a Patient Was Motivated by Reading His Office Notes

A patient who tried for years, and failed, to make healthier lifestyle choices finally found inspiration in the office notes his doctor shared with him.

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Editorials, Vol. 8, 2016

Considering the Evidence: Experience vs. Experiment

Modern medicine often disparages anecdotes as not worthy of serious consideration, but several studies suggest that we can all benefit from both types of evidence: experience and experiment.

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