Society for Participatory Medicine
Journal of Participatory Medicine
Evidence
Research, Vol. 5, 2013
Structuring Patient Advocates’ Appraisal and Evaluation of Health Research and Quality of Care
This study identifies the basic “issues that matter” to patients in clinical and research settings, with the goal of helping patients to better evaluate quality of care and health research.
Read MoreResearch, Vol. 5, 2013
Identifying Design Considerations for a Shared Decision Aid for Use at the Point of Outpatient Clinical Care: An Ethnographic Study at an Inner City Clinic
This study identifies several potential opportunities for the design and implementation of a computerized decision aid for an inner city clinic and for other outpatient clinical environments. The findings can inform the design and implementation of computerized decision aids for shared medical decision-making and inform the design of health information technologies for a wide range of clinical contexts.
Read MoreCase Studies, Vol. 5, 2013
Challenges in Measuring Patient Participation: Case Studies from British Columbia’s Patients as Partners Initiative
This article examines the implementation of the Patients as Partners initiative in British Columbia, which seeks to increase public engagement in health care, and the simultaneous development of coherent and practical measurements to gauge its success.
Read MoreResearch, Vol. 5, 2013
Mindfulness, Self-Care, and Participatory Medicine: A Community’s Clinical Evidence
Along with a growing body of studies documenting the effectiveness of mindfulness-based learning interventions, the authors’ findings demonstrate the ecological validity of mindfulness practice in the domain of participatory health care.
Read MoreReviews, Vol. 5, 2013
Mindfulness in Participatory Medicine: Context and Relevance
Mindfulness practice is gaining wide acceptance as an effective complement to medical care and therapy. At the heart of mindfulness is proactive personal engagement. We believe that it is time to begin considering mindfulness as an elemental principle in standards of care in the evolving model of Participatory Medicine.
Read MoreResearch, Vol. 5, 2013
What Patients Observe about Teamwork in the Emergency Department: Development of the PIVOT Questionnaire
This study appears to confirm that patients’ comments about health care services can extend beyond their satisfaction with the care they received. Expanding our understanding of patients’ awareness of team interactions may support efforts to improve teamwork processes that align with a patient-centered approach.
Read MoreResearch, Vol. 4, 2012
Impact of an EMR-Based Daily Patient Update Letter on Communication and Parent Engagement in a Neonatal Intensive Care Unit
This study found that using EMR data in the form of a daily patient update letter for parents of neonatal intensive care unit (NICU) patients resulted better communication and improved parents’ perceived competence to manage information in the NICU.
Read MoreResearch, Vol. 4, 2012
The Many Faces of Patient Engagement
This study was conducted to gain a more clear understanding of the term “patient engagement” and what it means to different stakeholders in different health settings.
Read MoreResearch, Vol. 4, 2012
Examining a Proactive Self-Care Index in a Mindfulness-Based Stress Reduction (MBSR) Program
Proactive self-care is a fundamental element of the Participatory Medicine model. Few indices measure self-care, and research about interventions that enhance self-care is sparse. This study aimed to develop a simple, direct measure of the dimension of proactive self-care in medical settings for use in research about participatory medical interventions.
Read MoreReviews, Vol. 4, 2012
What Is the Heart of Health Care? Advocating for and Defining the Clinical Relationship in Patient-Centered Care
The human connection between patient and clinician — the clinical relationship — is at the heart of patient-centered care. The authors aim to clarify the benefits of the patient-centered clinical relationship so that they can be more widely incorporated into practice, training, and accreditation.
Read MoreResearch, Vol. 3, 2011
Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.
Read MoreReviews, Vol. 3, 2011
Health Information Exchange: A Stepping Stone Toward Continuity of Care and Participatory Medicine
The author analyzes two successful health information exchange networks that represent promising models for integrating patient health information into one readily available source.
Read MoreCase Studies, Vol. 3, 2011
Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law
The authors use an ethical lens to focus on limits placed on health care decision making in the case of people governed by mental health law, using Victoria, Australia as their example.
Read MoreResearch, Vol. 3, 2011
Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations
Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.
Read MoreReviews, Vol. 3, 2011
Spock, Feminists, and the Fight for Participatory Medicine: A History
If there is a moment when the modern-day relationship between physicians and patients changed forever, it was when Dr. Benjamin McLane Spock, author and pediatrician, rose to address the closing session of the American Medical Association’s centenary meeting on June 13, 1947.
Read MoreCase Studies, Vol. 3, 2011
The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery
A cancer program specialized in treating patients with multiple myeloma developed a participatory care model which could lead to a changing paradigm in health care delivery with major benefits to patients and lower costs for health care in the US.
Read MoreCase Studies, Vol. 3, 2011
Promoting Recovery-Oriented Mental Health Services through a Peer Specialist Employer Learning Community
This case study explores how the peer specialist employer learning community can effectively guide organizations through the process of adopting a participatory approach to mental health service provision.
Read MoreResearch, Vol. 3, 2011
Perceptions About Quality of Care: Evidence from a Globe and Mail Blog
The authors found the insights gained from a newspaper blog to be a very revealing and useful form of data that can inform health policy, clinical practice, and further research.
Read MoreCase Studies, Vol. 3, 2011
Creating a Participatory Office Practice for Diabetes Care
Diabetes is a chronic condition that requires active participation by both the patient and various members of the physician’s office staff to achieve optimum outcomes. This paper discusses the Diabetes Master Clinician Program, a project that encourages participation in care though a disease registry, group visits, and empowerment of patients and office staff.
Read MoreResearch, Vol. 3, 2011
Patient Predictors of Detection of Depression and Anxiety Disorders in Primary Care
Findings of this study indicated that patient disclosure was highly related to the probability of primary care physician detection.
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Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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