Society for Participatory Medicine
Journal of Participatory Medicine
Evidence
Research, Vol. 3, 2011
Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
This study finds that the convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.
Read MoreReviews, Vol. 3, 2011
Health Information Exchange: A Stepping Stone Toward Continuity of Care and Participatory Medicine
The author analyzes two successful health information exchange networks that represent promising models for integrating patient health information into one readily available source.
Read MoreCase Studies, Vol. 3, 2011
Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law
The authors use an ethical lens to focus on limits placed on health care decision making in the case of people governed by mental health law, using Victoria, Australia as their example.
Read MoreResearch, Vol. 3, 2011
Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations
Participants in this novel study used smartphones to capture pictures and videos of their everyday health routines, enabling them to reflect on their choices and recognize where they can make improvements.
Read MoreReviews, Vol. 3, 2011
Spock, Feminists, and the Fight for Participatory Medicine: A History
If there is a moment when the modern-day relationship between physicians and patients changed forever, it was when Dr. Benjamin McLane Spock, author and pediatrician, rose to address the closing session of the American Medical Association’s centenary meeting on June 13, 1947.
Read MoreCase Studies, Vol. 3, 2011
The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery
A cancer program specialized in treating patients with multiple myeloma developed a participatory care model which could lead to a changing paradigm in health care delivery with major benefits to patients and lower costs for health care in the US.
Read MoreCase Studies, Vol. 3, 2011
Promoting Recovery-Oriented Mental Health Services through a Peer Specialist Employer Learning Community
This case study explores how the peer specialist employer learning community can effectively guide organizations through the process of adopting a participatory approach to mental health service provision.
Read MoreResearch, Vol. 3, 2011
Perceptions About Quality of Care: Evidence from a Globe and Mail Blog
The authors found the insights gained from a newspaper blog to be a very revealing and useful form of data that can inform health policy, clinical practice, and further research.
Read MoreCase Studies, Vol. 3, 2011
Creating a Participatory Office Practice for Diabetes Care
Diabetes is a chronic condition that requires active participation by both the patient and various members of the physician’s office staff to achieve optimum outcomes. This paper discusses the Diabetes Master Clinician Program, a project that encourages participation in care though a disease registry, group visits, and empowerment of patients and office staff.
Read MoreResearch, Vol. 3, 2011
Patient Predictors of Detection of Depression and Anxiety Disorders in Primary Care
Findings of this study indicated that patient disclosure was highly related to the probability of primary care physician detection.
Read MoreResearch, Vol. 3, 2011
Participatory Action Research in Public Mental Health and a School of Nursing: Qualitative Findings from an Academic-Community Partnership
Participatory-action research (PAR) is increasingly seen as an effective way of enhancing the relevance of scientific research, bridging science and service, and improving the adoption of evidence-based practice in health care. This study examines the development of a PAR initiative starting with a core group of mental health providers at a public mental health clinic and including relevant stakeholders in the community.
Read MoreResearch, Vol. 3, 2011
The Minnesota Pandemic Ethics Project: Sequenced, Robust Public Engagement Processes
The Minnesota Pandemic Ethics Project developed ethical frameworks for rationing scarce health-related resources during a severe influenza pandemic, including implementation guidance. The project yielded useful guidance and benefited from multiple public engagement methods and the sequence in which they were employed.
Read MoreReviews, Vol. 2, 2010
The Role of Patient Organizations in Participatory Medicine: Can Virtual Health Communities Help Participatory Medicine Accomplish Its Objectives?
Patient organizations aim to improve the quality of life for people and their families who are affected by certain health conditions. Even though there has been a sharp rise in the demands on health systems during the last few decades, these systems have benefited from technological advances and the increasingly active role of users in managing their own health.
Read MoreResearch, Vol. 2, 2010
Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research
A group of healthy men and women ages 35-47 came together to investigate citizen science as a model for personal health research. A pilot study was designed and conducted to investigate genomic data as it relates to B vitamin absorption and homocysteine levels.
Read MoreResearch, Vol. 2, 2010
Autism and the Measles, Mumps, and Rubella Vaccine: Need to Communicate a Health Study Retraction to Patients
The aim of this study was to elicit the beliefs of the Canadian public about the safety of the MMR vaccine immediately following the 2010 retraction of a 1998 study published in the Lancet.
Read MoreCase Studies, Vol. 2, 2010
Health Care Decisions in Disasters: Engaging the Public on Medical Service Prioritization During a Severe Influenza Pandemic
Seattle & King County held public engagement meetings to obtain feedback and recommendations from the local community regarding the prioritization of scarce medical services during a severe pandemic, and how those services should be allocated.
Read MoreResearch, Vol. 2, 2010
A Multivariate Test of Communication Competence, Social Support, and Coping among Hispanic Lay Caregivers for Loved Ones with Alzheimer’s Disease: An Extension of the Relational Health Communication Competence Model
This study explores relational health communication competence, social support, and perceived general coping among Hispanic caregivers for family members having Alzheimer’s disease or related dementia; and to test the Relational Health Communication Competence Model using data obtained in Spanish and English.
Read MoreCase Studies, Vol. 2, 2010
Shifting from Shared to Collaborative Decision Making: A Change in Thinking and Doing
Despite its theoretical appeal, the concept of shared decision making in the clinical encounter has yet to translate into practice. In this article we revisit this approach and suggest an alternative we have labeled “collaborative decision making,” which may lead to more equitable and more favorable outcomes.
Read MoreResearch, Vol. 2, 2010
Physician Communication: Barriers to Achieving Shared Understanding and Shared Decision Making with Patients
Our study investigates the specific barriers between physicians and patients that inhibit shared understanding and shared decision making.
Read MoreResearch, Vol. 2, 2010
Self-Diagnosis: A Discursive Systematic Review of the Medical Literature
This thematic review of clinical articles from the PubMed database evaluates the beliefs about, and discursive construction of, self-diagnosis from a medical perspective.
Read More
Hacking Health: Designing for and Understanding My Health
Participatory Medicine: Opportunities and Threats
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