Table of Contents
opinion
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Participatory Medicine: Must You Be Rich to Participate?
Joe Graedon and Terry Graedon
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Medication Adherence: More than Reminders
Kathy Kastner
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A Skydiver Jumps, and an Online Community Exults
Brian Loew and John Novack
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One Step Forward, Two Steps Back: Why Can’t We Protect Doctors Who Put Patients First?
Francisco J. Grajales III
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Sharks, Bees, and Health Privacy Paranoia
Fred Trotter
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Welcome New Co-Editors Joe and Terry Graedon
Charles W. Smith
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Who Gets to Define Quality?
Dave deBronkart
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Health Care: A Human Rights and Economic Justice Issue
Kathleen McCaffrey Friedman
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A Participatory Medicine Journey
Kathy Kastner
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The Importance of Complementary and Alternative Medicine in the Participatory Movement
Grace Karen Sweet
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One Size Doesn’t Fit All
Paul Bearmon
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Letter: Developing a Positive Patient-Provider Relationship
Sheryl Kurland
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What “Participatory” Means to Me
Kathy Kastner
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The Term “Patient” May Describe Me … But It Does Not Define Me
E. Michael D. Scott
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Evidence that Engagement Does Make a Difference
Jessie Gruman
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A Thank You to Departing Co-Editor Gruman
Charles W. Smith
evidence
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Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices
Linda M. Gallant, Cynthia Irizarry, Gloria Boone, and Gary L. Kreps
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Health Information Exchange: A Stepping Stone Toward Continuity of Care and Participatory Medicine
Nancy B. Finn
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Autonomy in Jeopardy: Contrasting Participatory Health Models with Patient Decision Making Under Mental Health Law
Cath E. Roper and Vrinda Edan
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Exploring Everyday Health Routines of a Low Socioeconomic Population Through Multimedia Elicitations
Danish U. Khan, Swamy Ananthanarayan, and Katie A. Siek
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Spock, Feminists, and the Fight for Participatory Medicine: A History
Michael L. Millenson
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The Cancer Supportive Care Model: A Patient-Partnered Paradigm Shift in Health Care Delivery
Elias Anaissie and Tara Mink
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Promoting Recovery-Oriented Mental Health Services through a Peer Specialist Employer Learning Community
Lynda Frost, Tammy Heinz, and Dennis H. Bach
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Creating a Participatory Office Practice for Diabetes Care
Edward Shahady
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Patient Predictors of Detection of Depression and Anxiety Disorders in Primary Care
Madalyn Marcus, Henny Westra, Monica Vermani, and Martin A. Katzman
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Participatory Action Research in Public Mental Health and a School of Nursing: Qualitative Findings from an Academic-Community Partnership
Irma H. Mahone, Sarah P. Farrell, Ivora Hinton, Robert Johnson, David Moody, Karen Rifkin, Kenneth Moore, Marcia Becker, and Margaret Barker
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The Minnesota Pandemic Ethics Project: Sequenced, Robust Public Engagement Processes
J. Eline Garrett, Dorothy E. Vawter, Karen G. Gervais, Angela Witt Prehn, Debra A. DeBruin, Franci Livingston, Angela M. Morley, Joan Liaschenko, and Ruth Lynfield
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The Role of Patient Organizations in Participatory Medicine: Can Virtual Health Communities Help Participatory Medicine Accomplish Its Objectives?
Noemi Guillamon, Manuel Armayones, Eulalia Hernandez, and Benigna Gómez-Zúñiga
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Citizen Science Genomics as a Model for Crowdsourced Preventive Medicine Research
Melanie Swan, Kristina Hathaway, Chris Hogg, Raymond McCauley, and Aaron Vollrath
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Autism and the Measles, Mumps, and Rubella Vaccine: Need to Communicate a Health Study Retraction to Patients
Neil Seeman and Mary Seeman
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Health Care Decisions in Disasters: Engaging the Public on Medical Service Prioritization During a Severe Influenza Pandemic
Meredith Li-Vollmer
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A Multivariate Test of Communication Competence, Social Support, and Coping among Hispanic Lay Caregivers for Loved Ones with Alzheimer’s Disease: An Extension of the Relational Health Communication Competence Model
Melinda R. Weathers, James L. Query, and Gary L. Kreps
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Shifting from Shared to Collaborative Decision Making: A Change in Thinking and Doing
Laura O'Grady and Alejandro Jadad
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Physician Communication: Barriers to Achieving Shared Understanding and Shared Decision Making with Patients
Brenda L. Lovell and Celeste M. Brotheridge
perspective
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The Patient Will See You Now
John Krueger
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Three Sisters, One Voice
Nancy Lisa Drinan
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A Resident’s View: What Does It Mean for a Resident Physician to Be Participatory?
David I. Rosenthal
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Women’s Wellness Guide Kiosks: Empowering Women to Take Charge of Their Health
Christina Reardon, Francis X. McKee, and Leslie Stiles
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A Breath of Hope for LAM Patients: The Relentless Pursuit to Defy the Odds
Nicole M. Seefeldt
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Empowered Patient — Empowered Lifestyle
Shannon Flynn
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A Physician’s Experience as a Cancer of the Neck Patient: The Importance of Patient Participation
Itzhak Brook
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Psychosis Possibly Linked to an Occupational Disease: An e-Patient’s Participatory Approach to Consideration of Etiologic Factors
Maria A. Mangicaro
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Integrating a Physical Office with an Online Platform to Improve Continuity of Care and Expand Patient-Physician Communication
Sean Khozin and Greg Juhn
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Armchair Advocacy for Tuberous Sclerosis Complex: A Patient’s Perspective
Nicole M. Seefeldt
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Judy Feder: Narrative of a Breast Cancer e-Patient
Judith Feder
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Improving the Process of Medical Decision Making: An Example from Palliative Care
Jessica Nutik Zitter
columns
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Just Text Me: Using SMS Technology for Collaborative Patient Mood Charting
April C. Foreman, Chris Hall, Karen Bone, Jeffrey Cheng, and Adam Kaplin
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Implementing an Interoperable Personal Health Record in Pediatrics: Lessons Learned at an Academic Children’s Hospital
Arash Anoshiravani, Gregory Gaskin, Ed Kopetsky, Christy Sandborg, and Christopher A. Longhurst
media watch
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Book Review: “A Symphony in the Brain”
Meredith Linden
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Recommended Website: “Team Up for Health”
Nancy B. Finn
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Book Review: “Out of Her Mind”
Meredith Linden
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Doctors 2.0 & You
Nancy B. Finn and Gangadhar Sulkunte
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CHI 2011 Conference on Human Factors in Computing Systems
Marcela Musgrove-Chávez
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Mobile Health 2011: What Really Works: A Patient POV
Alexandra Albin
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A Handbook for Patients Who Want to Change Health Care
Jessie Gruman
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SPM Members Weigh in on “Quality”
Kathleen O'Malley
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Recommended Post: “Time to Tango”
Charles W. Smith
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Pew Internet Report on “Peer-to-peer Healthcare”
Kathleen O'Malley
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The Madness and Literature Network Website
Charley Baker
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Report on the “Reassembling Health Workshop: Exploring the Role of the Internet of Things”
Cristiano Storni
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American Medical News Explores Social Media’s Pitfalls and Opportunities for Physicians
Kathleen O'Malley
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Snapshot of People’s Engagement in Their Health Care
Charles W. Smith
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Health 2.0 Goes to Washington
Kathleen O'Malley
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Health 2.0: What Works for Users
Trisha Torrey


